#RareDesease

Live, measured metrics for the hashtag #RareDesease from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #raredesease

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$10.85/ year · 11-character #name
Claim #raredesease — $10.85/yr→Buy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
3
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 3
0
Avg reactions / post
Mastodon · last 3
—
Reddit posts / month
Reddit search
—
Open-web mentions
hashtag.org Firehose

Day-by-day usage

measured · mas.to (Mastodon public tags API) · fetched 2026-10-13 03:55 UTC
0
10-07
0
10-08
0
10-09
0
10-10
0
10-11
0
10-12
0
10-13

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · mas.to (Mastodon public search API) · fetched 2026-10-13 03:55 UTC
#raredeseaseday
0 uses · 0 accounts / 7d

Live pulse

measured · mas.to (Mastodon tag timeline) · fetched 2026-10-13 03:55 UTC

Everything below is measured over the latest 3 public posts (spanning ~12057 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: German (2)

Avg boosts / post: 0.7

Top of the latest posts

  • Erste Symptome bei Tay-Sachs und Sandhoff erkennen (english subtitles) https://diode.zone/videos/watch/4a0fb846-9e37-4d5a-8776-a1b639c9ba32

    herrthees@herrthees@diode.zone♥ 0↻ 12024-02-29 20:17 UTCView post →

  • 29. Februar ist der Tag der seltenen Erkrankungen. Dario, der Sohn von Freunden, ist an Morbus Sandhoff erkrankt. Wir gründeten damals die Selbsthilfegruppe Hand in Hand gegen Tay-Sachs und Sandhoff. Hier ein Film über die Krankheit, die Fa

    HerrThees 🌈@herrthees@wue.social♥ 0↻ 12024-02-29 19:52 UTCView post →

  • Auch bei seltenen Erkrankungen kann der Platz beim Treffen der Betroffenen knapp werden. Über 150 Teilnehmende bei der Familienkonferenz in #Würzburg von Hand in Hand gegen Tay-Sachs und Sandhoff. Ein Wochenende voller Informationen, Unters

    HerrThees 🌈@herrthees@wue.social♥ 0↻ 02022-10-15 10:54 UTCView post →

#raredesease across platforms

every network with a public tag surface

Follow #raredesease straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.

X (Twitter) ↗Instagram ↗TikTok ↗Facebook ↗LinkedIn ↗YouTube ↗Threads ↗Bluesky ↗Mastodon ↗Reddit ↗Pinterest ↗Tumblr ↗

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/raredesease